It's been a bad day.....

[caneshockeychick]

And your prayers (or however else you "send the message across") are needed.

My sister is battling a little known disease or disorder called RSD.

What is RSD?

Reflex Sympathetic Dystrophy Syndrome (RSD) - also known as Complex Regional Pain Syndrome (CRPS) - is a chronic neurological syndrome characterized by:

severe burning pain
pathological changes in bone and skin
excessive sweating
tissue swelling
extreme sensitivity to touchToday, she went in for the last in her series of nerve blocks for this to hopefully help numb her pain and basically stopped breathing while under anesthesia and had to be resuscitated. When her breathing still did not return to normal she was sent to the ER. They believe she also had a stroke today and on the last phone call I've received from my mother, well she's now regained her feeling in the right side of her body and her lips are no longer drooping but....she has extreme pain in her head (combined with the pain she has in her right arm), her speech is slurring and she's now lost her vision.

While my sister and I have never been real close, never been really good friends, I've never wanted her to experience anything like what she's experiencing now. I'm very very scared that I'm going to lose her and I know her daughter and my mother are very scared also. We are truly the only people who care about her at this moment. While my father says he's praying for her, I wonder (I'm not on good terms with him either and its been hard for me to call him and let him know what's going on with his other daughter).

So, all I'm asking is for some prayers, or whatever it is you do to get thru things like this. I'm somewhat in a shock right now, not knowing what to do or what will happen and its hard when your whole family is in Florida and you are so far away from everything that is happening.

And if you want more information on RSD go to: http://www.rsds.org/index2.html and/or http://www.rsdhope.org/

Also, to find out what a day in my sister's life is like please read: http://www.rsdhope.org/Showpage.asp?PAGE_ID=1&PGCT_ID=2953 It's not a pretty picture, believe me, I've seen it.

Thank you all! :cry:

[CANESFREAKinDET]

Oh no. :( I hate hearing this stuff, it happens to the best people. It was so nice meeting you (if only briefly) when I was down there, you're so sweet, and I'm so sorry to hear this.

She, you and your family are definitely going to be in me and my family's thoughts and prayers, girl! :( :kiss:

[ONeillsNo1Fan]

*hugs* I'm so sorry to hear that. My thoughts and prayers are with you and yours.

[livinthedream]

So sorry to hear about your sister's troubles CHC. God bless her, I hope everything works out, I can't imagine what a scare that must have been. I lived away from my family for a while, and I know it has to be hard on you being so far away especially during times like this. And, if you can muster it, I do hope you can talk to your father. Good luck and god bless.

[Zamboni]

I'm sorry to hear your terrible news, CHC. My heart goes out to you, your sister, and the rest of your family.

[caveman]

Best wishes for you and your family, chc, from the bottom of the hearts of the caveman familiy.

[pharmkat]

So sorry to hear of this. I'll be thinking of you all.

[kermelbar]

CHC, I work for an attorney who handled a case for a woman who had RSD/CRPS and I have a teeny ifrs of how difficult your sister's life is, based on what our client's life was like. (Her case was related to the RSD/CRPS because it was a result of an injury she suffered at a store.) Of course, I can't begin to imagine what it's really like to be in that much pain all the time.

My thoughts and prayers go out to her, you and your family.

[SouthernHockeyChick]

I'm so sorry to hear this! :( My god, that just sounds horrible. I'll be thinking about you and your family. I know what it's like to watch someone you love helpless and in pain. My heart aches for you.

[kermelbar]

I have a teeny ifrs of how difficult

Erm, idea, that is. Fingers were apparently on wrong keys. No idea where eyes were.

[nccanes]

Oh dear - I'm so sorry. I hope the good signs continue chc.

I've had numerous friends and family have bad news health stories lately and it's very scary and depressing.

Some of you young LGCers (well, not TOO young) need to start having babies and give us all a reason to smile. :)

Big hugs, chc.

[MeanGene]

Prayers sent.

[Stormbringer]

Very, very sorry to hear/read this!! :( :cry: Like everyone else, I will keep you in my thoughts and prayers.

[caniac369]

Nothing like this is ever easy. Thoughts, prayers & hugs coming your way from the left coast!!

[caneshockeychick]

Well, my mother just called me and very bad news now. My sister's having a brain hemmorage and if they don't find a neurosurgeon tonight, well, things won't be good. :cry:

Thank you all for the prayers and well wishes.

[MeanGene]

More prayers sent.

[Shell]

oh my goodness. I am so very, very sorry. Please let me know if I can do anything at all. I am so sorry. :(

[caneshockeychick]

I'll be on my way to florida shortly...They have found a neurosurgeon and are transporting her to another hospital so, I'm very hopeful right now.

According to my mother, she hasn't lost her feistiness yet ;)

[nccanes]

Good luck chc. We'll all be thinking of you and your sister.

[StormShaman]

Luck, CHC. I'll say a prayer for your sister tonight.

[Captain Slack]

So sorry to hear about your sister. :( The wife of a former co-worker of mine had RSD. It's not someone I would wish on anyone.

[SoCalcaniac]

OMG. I just saw this, how awful. I hope CHC got to Florida ok, Lots of good thoughts to you and your family CHC, especially your sister.

Having experienced my own health crisis a couple years ago, though nothing even close to this, I wish your sister the best with lots of prayers in there too.

[aftermath]

CHC, my prayers are with you. I am so sorry that your family is going through this. :(

[RIO]

I'm SO SO SO sorry. My twin sister and I deal with a chronic pain/autoimmune disorder ourselves on a daily basis, and I can't tell you how sorry I am about your own sister. That's horrible and frustrating. You have our deepest sympathies. :( We'll say a prayer for you both.

[shill22]

we wish the best for your sister and your family. sure is hard having someone sick.

[puck_it]

oh no! I wish you the best of luck in getting through this. It cant be easy, but i hope you find the strength.

[Shattered]

So sorry to hear this. Prayers & hugs to you and your family. :(

[caneshockeychick]

I've found a library right down the road from the hospital my sister is currently at and thought I would come here and thank you all!!!!

In the end, she didn't need surgery but they still don't understand what is going on in her head. She had another MRI yesterday and an EEG today but we seem to be missing the Doctors when they come around. There is some bleeding in her brain and right now they are giving her some antibiotics, anti-seizure meds and something to get the swelling to go down. Her vision has returned although she can't focus for too long. And she doesn't remember the previous days. Hopefully we will find out soon what is going on.

Again, thank you all for the well wishes and the prayers. It must be working :D

[Serendipity]

Thinking of you and your family.

[caneshockeychick]

Asking for those blessings and prayers from you guys again for my sis...whew...I wonder if eventually I will use them up :lol:

I'm trying to stay positive here but she just recently went in for her checkup and possible bad news...the doctor found lumps in both her breasts :cry: We just found out last week that our Aunt in CA had surgery on her breasts and now my sis gets hit with this. I declare, if it weren't for "health" bad luck, my sis would have no luck at all. She goes in for a mammogram and ultrasound tomorrow so we won't know for sure anything for awhile but this worked last time so, here I go again.

DAMMIT...SHE'S ONLY 32!! :mad:

[nccanes]

Oh no. Hopefully all good news tomorrow!

[Guyute]

Oh no is right. So sorry to hear it. Thoughts and prayers that there's some good news coming.

[apolinar]

Praying too here in Clinton

[bonniebroad]

CHC, I only read this thread today. I want to say how sorry I am that your poor sister is having to go through all this. I presume your sister recovered from her terrible episode a few weeks ago? Her vision is okay, and she recovered from the stroke-like symptoms? Sending many good thoughts out for your sister!

[caneshockeychick]

Thank you all for the good wishes and such...Good news arrived this past week. All is good :D

[Mona2006]

chc I just saw this. I am thankful that everything is ok with your sister. :thumbsup:

[Solracer]

Thank you all for the good wishes and such...Good news arrived this past week. All is good :D


I just saw this too, that is awesome news.

[Captain Slack]

Thank God for that!

[ONeillsNo1Fan]

Yay! :)

[IceSaber]

Oh CHC, I just logged on - don't com ein too often - I'm so sorry you all have been going through this - you know how I feel about you - let me know if you need anything - at all!

Hope that good news was that things have cleared up and she's back to normal (or hopefully better!)

How's her daughter doing???